热过敏 & 胆碱能性荨麻疹 (cholinergic urticaria)
这篇算是我自己治疗的日记, 提供给相同的病友参考
从国中就曾经发生过,经过20年, 大概只发生过5次
这20年没有做过任何治疗或改变饮食
直到去年
2021/3: 可能是工作因素, 荨麻疹开始大爆发, 只要有压力或遇热食物吃到辛辣调
味食品(包含胡椒)
就会浑身刺痛和痒 (每天都会发作全身上下头皮都像是针在刺)
若直接去运动就会全身爆发布满小红点, 有些病友是直接靠运动解决
但在疫情期间, 也无法外出运动
2021/4~2021/11: 停喝咖啡,开始用中西医合并治疗, 吃中药和每天一颗驱异乐. 和吃乐亦康益生菌
治疗8个月, 结果对我无效
夏天期间户外只要超过28度根本无法出门走在路上, 只要体温一上身立刻发作
上班一有压力也会立刻发作
2021/12~2022/3: 取消中医治疗, 加强西医治疗改成 早晚各一颗艾来睡前驱异乐. 没有
明确改善
2022/3: 搜寻国外文献和资料发现omega 3 可能有帮助
https://www.cholinergicurticaria.net/fish-oil-pills-omega-3-6-and-cholinergic-urticaria-hives/
Hi, I have/had Cholinergic Urticaria also. I’d like to share what seems to
be working well for me and hopefully someone else can try it and see if it
works for them as well.
first off : Me…..I’m a white, fair skinned, 25 year old male who started
getting symptoms suddenly 2 years ago…no change in diet, no known allergies,
no meds, high but typical stress levels, in pretty good physical shape.
Within a month I went from normal to grinding my teeth in pain after having
to make a sudden stop in traffic, or getting in a hot car, or attempting to
work out.
What worked: fish oil pills, more specifically, the omega 3 fatty acids EPA
and DHA…. I just took what it said on the bottle (a little more at first I
think). It helped a lot after about 2 weeks. After a few months I stopped
with the pills but would go back on them for a month if I felt things
starting up again, since at that point it would come back if I stopped for a
few weeks. As of now, I haven’t taken a pill in 6 months and am symptom free
90% of the time, and when I do feel something, its just a little very short
lived very mild itching with nothing visible happening on the skin.
So yeah, not an instant perfect miracle cure, but it is easy to get, cheap,
healthy, and you’ll know in a month if it is going to have an effect or not,
so it might be worth a shot.
seems worth a shot to me so i bought some fish oil pills
i will of course be logging my results in my ‘experiment’ post located in
this same category on this forum
2022/4: 减量西医用药, 并开始吃鱼油, 先从好市多便宜的鱼油开始吃起, 我选择了莱萃
美吃了一个月后, 发作频率似乎有减少但效果不大
参考了两篇ptt 文章
[心得] 鱼油品牌该挑哪个？ 小分析请进
https://www.ptt.cc/bbs/BabyMother/M.1579007446.A.C1D.html
2022/5 月 看到这篇文章
[问题] 热过敏 甲亢 自体免疫
https://www.ptt.cc/bbs/allergy/M.1649376169.A.94F.html
才想到是否鱼油吸收问题? 或是剂量不够
直接购买板友推荐的澳佳宝, 我是直接选三倍鱼油
2022/6月开始执行只吃鱼油, 少量喝咖啡
以前一天一杯, 现在不喝...除非当天非常困
且只少量饮用
2023/1 只吃鱼油并戒除大量咖啡因持续半年. 有明显改善且都没有发作
2023/4 荨麻疹症状已完全消失
但仍会持续吃鱼油改善体质
目前改吃California Gold Nutrition, 欧米伽 800 医级鱼油
提供给各位病友参考